Doctor Notes | Eastern Medicine Kind of Girl

To prepare for my appointment with Dr. Georgette Varga, a movement specialist and neurologist in Austin, Texas, I wrote the following note and emailed it to her a couple of days ahead of my appointment.

Current Symptoms

Memory problems
 Weakness in both arms, L worse concentration
 Afraid of falling
 Anxiety
 Dizzy spells: happen when sitting/standing up
 Weight change: lost 20 pounds since November
 Vision changes
 Fatigue
Incontinence
 Pain level consistently between six and eight out of 10
Leg movements when going to sleep: slow movement has been happening since birth
Rocking since birth
Tremors
 Chronic Constipation
 Cramping in left and right arms, both shoulders and neck
Pain in left arm/chest
Feel like difficult to stop, difficult to start. Ex: projects

Things to Note:
Grandfather was a Korean vet who had diabetes, heart attacks, strokes, prostate cancer and Alzheimer's.
Father died of mass tumor in his body that caused surgeons to remove pancreas and part of his stomach. Died of septic shock and stroke.
 I was born in North Dakota where the Parkinson's test rate is higher than that of the rest of the country. 2, 4– D was sprayed on the field near the Minot Air Force Base where I was born.
 I've had symptoms since 2009. I've been off antipsychotics since 2011.
I am still progressing.

Research I'm sharing:
North Dakota Parkinson’s Death Rate :http://www.worldlifeexpectancy.com/usa/north-dakota-parkinsons-diseaseNorth Dakota County Map: http://www.ezilon.com/maps/images/usa/north-dakota-county-map.gifNutrients, Suspended Sediment, and Pesticides in Water of of the Red River of the North Basin, Minnesota and North Dakota, 1990-2004: http://pubs.usgs.gov/sir/2007/5065/Center for Food Safety’s Parkinson’s Disease and 2, 4-D: A Summary of the Evidence, May 2013-14: http://dow-watch.org/cms/assets/uploads/2014/01/24-D-and-Parkinsons-Disease-Summary-FINAL1.pdfPesticides Trigger Parkinson’s Disease: http://www.beyondpesticides.org/gateway/health%20effects/parkinson's%20cited.pdf
Agent Orange Use During the Vietnam War: http://covvha.net/vietnam-war-agent-orange/Veterans Exposed to Agent Orange in Vietnam & Korea: http://www.benefits.va.gov/compensation/claims-postservice-agent_orange.asp
Veterans’ Diseases Associated with Agent Orange: http://www.publichealth.va.gov/PUBLICHEALTH/exposures/agentorange/conditions/index.aspSymptom-relieving and neuroprotective effects of the phytocannabinoid THCV in animal models of Parkinson’s Disease: http://www.publichealth.va.gov/PUBLICHEALTH/exposures/agentorange/conditions/index.asp

We ran late to the appointment. It was not my intention to be late, but the universe had other plans. I'm trying to go with the flow, but I raced up the walk way because I hate to be late. 

That morning as I was dressing I had to remember that I was dressing not just for my doctor's appointment, but for a day in Austin which included dinner with friends later. I gazed lovingly at my heels and I felt disappointment because I knew that with my dizzy and falling spells that I should not be wearing heels. I expressed my woe to my spouse and he told me that he would be next to me at all times, not to worry. I smiled at him, delighted he understood. Giving up my heels would be a last ditch effort. I wasn't giving up just yet!

It was my high wedges that the doctor's assistant remarked upon when he saw me. I smiled, said nothing. Then the doctor came in. She asked me how I was doing and I blurted out that I was progressing. It had gotten worse. 

She asked about my arm and if I had changed my mind into having carpal tunnel surgery. I said nothing as she rambled on about how I could lose the use of my arm. 

I piped up in anger, "What difference does it make if it ruins the right arm? We have to know the cause. We can't just go and do more damage to the body by doing surgery."

She pursed her lips. I could see that I was frustrating her. I had become a belligerent patient. Oh my. Was I in for it!

She would not look at my research and insisted that I did not have Parkinson's. She wouldn't examine me either to notice my progression. I persisted in telling her what I had learned in my research about pesticides and Parkinson's. I held up my hand to get her to listen to me when she tried to bowl me over. I told her that my estranged sister had just contacted me and told me that she has the very same symptoms. The very same. From the cramping and tremors, to the storms, and to the severe cognitive dysfunction when it came to memory.

She responded that I don't have tardive dyskinesia and I don't have Parkinson's. When I persisted in asking her what I did have, she responded, "You should get a second opinion. I don't know."

Aha! We got to the root of the problem, didn't we? She doesn't know. No doctor knows. There are too many diseases that are unknown. Until medical science has advanced enough to readily be able to diagnose what I have I will kindly stay away from all western medicine. I'm an eastern medicine kind of girl, I guess.

Research | Self Diagnosis of Parkinson's Disease

I remember as a Bipolar patient that I was never supposed to question my doctors. Society thinks that doctors know everything simply because they attend college for eight years. Most people think that doctors have their patient's best interests at heart and some do, but most are more concerned with the bottom dollar than the patient.

My diagnosis has evolved over the years. It's not an easy thing to be a bipolar patient and even harder to be a misdiagnosed one. The drugs that they put you on dope you up more than illegal drugs and they pollute your liver, kidneys and brain like any other. I will go so far as to venture to say that antispychotics, antidepressants, and benzos are the kind of drugs that make you crazier than you were to begin with.

But, I digress. I want to share with you my most recent findings that suggest that what I'm suffering from was caused by a combination of GMOs and pharmaceuticals. Western medicine has given me the diagnosis of Tardive Dyskinesia, but I'm discovering that Parkinson's Disease is my true diagnosis. I'm self diagnosing myself. I'm aware that many people will think I'm crazy (what's new?!), but I say that I'm crazy like a fox. I'm not being a complacent patient anymore. I'm doing the research, standing up for what I believe in and I'm sticking to it!

Over the last six months my disease has progressed tremendously. I've gone from merely having cramping and pain (rigidity) in my left hand and arm to cramping and pain in the left shoulder and neck to cramping and pain in my right hand, arm, neck and shoulder. Since October I've developed severe dizziness from standing up (I've learned to stand up slowly, but it doesn't matter) that makes me feel faint and I've fallen a few times. Since January I've noticed a steady decline in my thought process and I find myself unable to finish my thoughts that are voiced aloud in conversation.

After researching pharmaceutical options (only two drugs for Parkinson's and one is an antipsychotic. We all know how I feel about those!) I have concluded that cannabis oil is essential for the future of my health.

Here are my educated reasons for my self diagnosis of Parkinson's:

1. I was born in Minot, North Dakota in 1974. In 1970, rapeseed began to be mass-produced in that region. Interestingly enough thereare more North Dakotans that have Parkinson's than any other place in theUnited States. The common herbicide used during that time was 2, 4-D. For those not in the know, 2, 4-D was an ingredient in Agent Orange that was used in the Vietnam war. The high prevalence of the herbicide led the Center for Food Safety's report detailing how the herbicide is the reason for the greater numbers of Parkinson's in the area. Pesticides and GMOs are a leading cause of Parkinson's. I read an article that suggests that the herbicide was over everything in the Red River Basin area and babies crawling on the ground were highly susceptible to poisoning from it.

2. At every appointment my neurologist, which specializes in Parkinson’s, has questioned why my illness is progressing when typical Tardive Dyskinesia patients don’t usually progress. In fact, they are usually all better within a couple of years after taking antipsychotics. I’ve been off antipsychotics since 2011. I’ve done some research that suggests that the antipsychotics just kicked in my Parkinson’s earlier than usual.

3. My body presents the following arguments: I have a tremor, rigidity and cramping throughout my body, andorthostatic hypotension which leads to postural instability (my blood pressure gets low and I faint or fall) with dyskinesia movements (looks like my left arm is dancing, uncontrollable), and I'm beginning to experience cognitive dysfunction (I can’t finish my thoughts that are said aloud in conversation). I have three out of the four defining characteristics that are necessary to diagnose Parkinson's.

4. Unfortunately, western medicine dictates that Bradykinesia, the last characteristic, must be present to diagnose Parkinson's. Many patients who are eventually diagnosed with Parkinson's suffer from all of the symptoms for years, maybe decades  before they actually get to the slow and jerky movements. Most Parkinson's patients are diagnosed at the median age of 67.

After researching pharmaceutical options (only two drugs for Parkinson's and one is an antipsychotic. We all know how I feel about those!) I have concluded that cannabis oil is essential for the future of my health. I'm taking steps to attain the substance legally since it is not legal in the state that I live in.

I have to move to Colorado and I'm partially unhappy about my decision. I have children here and it will tear me apart to leave them, but it is my only viable hope to living a pain free life.

I have an appointment scheduled in a couple of weeks to see my specialist, Dr. Varga, but I'm unsure if she can do anything to help me. She is one of the best neurologists in Austin. She's good at being a western medical doctor, but I'm not sure if she's up to date on cannabis research and that's the kind of neurologist I need.

I may not have a medical diagnosis of Parkinson's Disease, but I know what's going on with my body. I scorn all western medicine anyway. It doesn't matter what they say. It only matters if the cannabis oil works for my symptoms and it does and that's A-FUCKING-OKAY for me!