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Saturday, August 16, 2014

Wellness Journal | Cannabis Oil Concentrate Short Study Day 2

I took the first dose last night and feel fine. I felt it almost immediately. My spouse says that's not possible, but it's how I felt. Within an hour I was pretty woozy. This morning I woke to less pain and my hand and wrist look somewhat normal!!!



10:40 AM 
Pain level: 6 out of 10.
Time for my next dose at 11am, then again at 4pm and 10pm.

Didn't take a dose at 11 AM so it took some more at 1 PM. I'm kind of getting used to the taste.



1pm Cannabis Oil Dose

8/24/14 Notes: 
I was so super doped up the rest of the day that I didn't do much! I was woozy and tired. I kept falling asleep whenever I sat still for just a moment. It was kind of surreal how much it made me tired. I was still feeling pain, but nothing like before.

The dreams were impressive. I've never had such lucid dreams before. I also remember waking up in a panic, like a panic attack, thinking that something was wrong. Realizing nothing was wrong, I drifted back into sleep. Sleep was really difficult the first night mostly because my sleeping was so lucid. I knew what was going on around me and during my dreams. It was very odd and I had a difficult time adjusting to the feeling.

DISCLAIMER: These journals are intended for informational purposes only.
Help with the cramping and the tremors but doesn't get rid of them.

Going to get a scale today and some gelatin capsules. 




Friday, August 15, 2014

Wellness Journal | Cannabis Oil Concentrate Short Study Day 1




Pain level: 
8.5 out of 10. 




Notes:

12:16 pm:
Tired. Great sex this morning increased my serotonin levels. Severe right hand and arm pain. Trying to relax and remember that everything that's meant to be will be. Trying not to post any negative stuff on Facebook. It's really hard, but I'm trying! Eyes hurt, glasses broke today. Should've been upset, but wasn't. Why is it I feel like I need an assistant and why don't I get everything done in a done that I need to get done?

2:55 pm:
I've been avoiding the mailbox because I'm supposed to get a special secret package today but it was supposed to be here two or three days ago so i'm psyching myself out about it which sucks! it's going to be there I believe that it's going to be there because that's what I believe and that's what I want so I'm emanating love out of my chest right now.... I take that feeling I get when I'm with Bill and I put it inside my chest until my entire body feels like it's pulsing that vibration...

4:00 pm:
I got my oil a few minutes ago!!! It's kind of amazing! It came in an ordinary box, and a gold envelope sealed envelope. I gently tore the envelope open and found a tube of dark green oil. It smelled immediately upon opening it. Amazing, really, how like marijuana it smelled, yet...it smelled like the most marvelous marijuana I've ever seen...

Eating it was fun. I got some on my fingers and I had to gnaw at it with my teeth until it disappeared enough for me to use soap. (No, soap didn't work on it.) I put a small drop of oil on a piece of seaweed and that made me gag, but I kept it down.

9:35 pm: I took it at 8:30. I've been feeling the effects from that from the very minute I took it. 15 minutes after ingesting the oil, my boyfriend, Bill, gave me a shotgun (passing marijuana smoke with mouth to mouth) and that kind of set it off and now I'm so high...so, very, Very high.............

Thursday, August 14, 2014

Doctor Notes | Eastern Medicine Kind of Girl

To prepare for my appointment with Dr. Georgette Varga, a movement specialist and neurologist in Austin, Texas, I wrote the following note and emailed it to her a couple of days ahead of my appointment.

Current Symptoms

Memory problems
 Weakness in both arms, L worse concentration
 Afraid of falling
 Anxiety
 Dizzy spells: happen when sitting/standing up
 Weight change: lost 20 pounds since November
 Vision changes
 Fatigue
Incontinence
 Pain level consistently between six and eight out of 10
Leg movements when going to sleep: slow movement has been happening since birth
Rocking since birth
Tremors
 Chronic Constipation
 Cramping in left and right arms, both shoulders and neck
Pain in left arm/chest
Feel like difficult to stop, difficult to start. Ex: projects

Things to Note:
Grandfather was a Korean vet who had diabetes, heart attacks, strokes, prostate cancer and Alzheimer's.
Father died of mass tumor in his body that caused surgeons to remove pancreas and part of his stomach. Died of septic shock and stroke.
 I was born in North Dakota where the Parkinson's test rate is higher than that of the rest of the country. 2, 4– D was sprayed on the field near the Minot Air Force Base where I was born.
 I've had symptoms since 2009. I've been off antipsychotics since 2011.
I am still progressing.

Research I'm sharing:
North Dakota Parkinson’s Death Rate :http://www.worldlifeexpectancy.com/usa/north-dakota-parkinsons-diseaseNorth Dakota County Map: http://www.ezilon.com/maps/images/usa/north-dakota-county-map.gifNutrients, Suspended Sediment, and Pesticides in Water of of the Red River of the North Basin, Minnesota and North Dakota, 1990-2004: http://pubs.usgs.gov/sir/2007/5065/Center for Food Safety’s Parkinson’s Disease and 2, 4-D: A Summary of the Evidence, May 2013-14: http://dow-watch.org/cms/assets/uploads/2014/01/24-D-and-Parkinsons-Disease-Summary-FINAL1.pdfPesticides Trigger Parkinson’s Disease: http://www.beyondpesticides.org/gateway/health%20effects/parkinson's%20cited.pdf
Agent Orange Use During the Vietnam War: http://covvha.net/vietnam-war-agent-orange/Veterans Exposed to Agent Orange in Vietnam & Korea: http://www.benefits.va.gov/compensation/claims-postservice-agent_orange.asp
Veterans’ Diseases Associated with Agent Orange: http://www.publichealth.va.gov/PUBLICHEALTH/exposures/agentorange/conditions/index.aspSymptom-relieving and neuroprotective effects of the phytocannabinoid THCV in animal models of Parkinson’s Disease: http://www.publichealth.va.gov/PUBLICHEALTH/exposures/agentorange/conditions/index.asp


We ran late to the appointment. It was not my intention to be late, but the universe had other plans. I'm trying to go with the flow, but I raced up the walk way because I hate to be late. 

That morning as I was dressing I had to remember that I was dressing not just for my doctor's appointment, but for a day in Austin which included dinner with friends later. I gazed lovingly at my heels and I felt disappointment because I knew that with my dizzy and falling spells that I should not be wearing heels. I expressed my woe to my spouse and he told me that he would be next to me at all times, not to worry. I smiled at him, delighted he understood. Giving up my heels would be a last ditch effort. I wasn't giving up just yet!

It was my high wedges that the doctor's assistant remarked upon when he saw me. I smiled, said nothing. Then the doctor came in. She asked me how I was doing and I blurted out that I was progressing. It had gotten worse. 

She asked about my arm and if I had changed my mind into having carpal tunnel surgery. I said nothing as she rambled on about how I could lose the use of my arm. 

I piped up in anger, "What difference does it make if it ruins the right arm? We have to know the cause. We can't just go and do more damage to the body by doing surgery."

She pursed her lips. I could see that I was frustrating her. I had become a belligerent patient. Oh my. Was I in for it!

She would not look at my research and insisted that I did not have Parkinson's. She wouldn't examine me either to notice my progression. I persisted in telling her what I had learned in my research about pesticides and Parkinson's. I held up my hand to get her to listen to me when she tried to bowl me over. I told her that my estranged sister had just contacted me and told me that she has the very same symptoms. The very same. From the cramping and tremors, to the storms, and to the severe cognitive dysfunction when it came to memory.

She responded that I don't have tardive dyskinesia and I don't have Parkinson's. When I persisted in asking her what I did have, she responded, "You should get a second opinion. I don't know."

Aha! We got to the root of the problem, didn't we? She doesn't know. No doctor knows. There are too many diseases that are unknown. Until medical science has advanced enough to readily be able to diagnose what I have I will kindly stay away from all western medicine. I'm an eastern medicine kind of girl, I guess.


Tuesday, August 12, 2014

Wellness Journal | Pre-Cannabis Study Notes

This is my very last journal before my meeting with the doctor on August 13, 2014. I'm nervous, but confident in what I'm proposing. I know without a doubt this is happening to me and I have Parkinson's.

I watched a video today of Michael J Fox, I'm reading his book right now, too. I feel it in my bones that I have Parkinson's. I've never felt the other diagnoses like this. There was always a nagging doubt in the back of my head, but now there's just certainty....that the doctors are only guessing. The only person who knows what I'm going through is another Parkinson's patient. I'm looking for one that has taken the oil, but I haven't found him or her just yet, but I will.

I also know that I'm going to beat this!!!!
  
Today is Friday, August 8, 2014. Yay!!
Pain Level:
6 out of 10. (10 = worst.)

Symptoms: 
convulsing, left fongertips, left wrist, left neck, three dizzy spells today.


Progression notes: 
I laid down on my stomach after making love with my neck to the right and my body convulsed in my torso area for a good three minutes. I wanted to cry. I no longer have any control over my body. In that moment I decided to lose control and just let be. I shouldn't worry how others see me, but I do. I have to learn to let go of that fear because it will consume me. Instead I will retrain my brain to remember in such times that control is overrated.

Today is Saturday, August 10, 2014.
Pain Level:
7.5 out of 10. 10 = worst.

Symptoms: 
Right hand started hurting two days ago then my right wrist hurt, then my forearm and bicep. Today my right shoulder and neck hurt, too. My left arm hurts worse, too. A lot of pain today.

Progression notes: 
Two arms in pain. Yay, me.

12pm after smoking
Photo(s) of Left Hand:





Photo(s) of Right Hand:

Mental: 
I'm doing good today except that I keep finding myself being negative about things. I need to believe. I need to watch the secret again.

Happiness Level:
2 out of 10 (10 being the worst.)

Stress Level: 
4 out of 10. (10 being worst.)


Marijuana consumption:
Several bowls this morning and a couple to help with pain.

What I did today:
We got up went out for breakfast at Meños, made love, went to Kmart to get water dispenser because I'm having a difficult time lifting our water jugs.

Conclusion/question: 
I need to drink more lavender kava tea! It helps me with my stress and to sleep. Not to mention how delicious it is! Mmm!!!

Today is Monday, August 11, 2014.

Pain Level: 
8 out of 10. (10 being the worst.)

Symptoms: 
I've been experiencing some shocks to both hands and it causes excruciating pain. Very difficult to hold things or even drive. 😕 severe cramping today, neck and shoulder pain of both sides.



What's going on in my life today:
Lazy day mostly, did a lot of research. Read Michael J Fox. What I read made me sad bc I see so much of myself in his early symptoms. Learned my grandfather was in Korean War. I think he was exposed to agent orange hence his strokes, cancer and Alzheimer's.

Mental: 
I cried a little, but sticking to positivity!

Happiness Level: 
2 out of 10. (10 being the worst.)

Stress Level: 
2 out of 10. (10 being worst.)

Bedtime and Sleep issues: 
Pain while I slept last night.

Marijuana consumption: 
A lot!

Note to self: 
Find body outline to mark pain for blog.


Today is Tuesday, August 12, 2014.
Symptoms: 
8 am: Right side hurts worse today. Cramping in my left shoulder blade. Lots of tremors. Can't control them today and I'm getting stressed about whether or not people will notice at tonight's meeting.
Pain level: 7 out of 10 (10 = worst).
11:19 am: Excrutisting pain. I've been in tears for two hours. 😪 I wish I could cancel tonight's meeting, but I am needed. :(
Pain level: 9 out of 10 (10 = worst).


Mental: 
I need to stop focusing on the negative and start focusing on what I want so positivity can flow easily.

Marijuana consumption:
I'm having a hard time smoking, makes me cough. 

What I did today: 
Dude, I had the best time at the potluck tonight! It was super, super fun! I loved it! And I got so high and happy!!! My estranged sister called. We haven't spoken just yet, but the call will be as its supposed to be...I don't have fear because I miss her. I love her. And because only the universe knows the best possible outcome. 

Sunday, August 10, 2014

Research | Undiagnosed Agent Orange Poisoning Suspected


In my GMO research I've been privy to a bunch of information from Children of Vietnam Veterans Health Alliance and I'm considering the possibility that one or both of our grandfathers that were in the Korean War could've been poisoned by Agent Orange and passed it onto my sister and I even generations later. There are many patient accounts that are suggesting that this is correct.

I disappointed my daughter today. She wanted to dye her tips turquoise and I hemmed and hawed all week. This morning I said that I would go and look at the hair dye. So, we looked at YouTube videos today to see which technique she wanted to use. I was once in the beauty industry and I know how to do all kinds of things like that.

I remembered that I still had purple hair dye up in the cabinet, so we took it down and did a test strip on a cut piece of her hair. The dye didn't come out the shade she wanted so we had agreed to go to the store to buy some more. After I was dressed I walked into the bathroom and I shut the door. I stood at the sink and stared at the little tub of purple hair dye.

A multitude of thoughts crossed my mind, all of which were some article or another warning me of chemical dangers. Dye was a predominant chemical in the beauty industry. Almost all permanent hair dye in the United States is a banned substance in Europe. Manic Panic is semi-permanent and does not include a banned ingredient, BUT it does contain methylparaben and monoethanolamine.

Suffice it to say, I know that these ingredients are not good for anyone and I would bet my very last dollar that's a toxic chemical that is better left in the bottle. I didn't know until that very minute why I had taken my sweet time taking my daughter to Sally's this week, but I was certain that I was not going to take her after all.

When I told her that we weren't going because of the toxic chemicals in the hair dye she was very upset with me. I felt bad for disappointing her, but I stood my ground and I tried to explain it as best as I could.

"Lexi, you know that Grandpa said he was in the Vietnam War. He said that he spent a good six months recovering from a bullet wound in his back. He fought in the jungles over there. We don't know what he was exposed to, but Agent Orange was sprayed in those jungles. He died at the age of 54. We don't know what really happened to his health or if it was affected because of his time over there. You also know that 2, 4-D herbicides were sprayed all over the area where I was born in North Dakota. You know how sick I am, right?" I paused to try to pull the cover off of her head, but she held on tightly.

"Lexi, I don't wish on you what I have. I know you think that what Grandpa had or what I had don't apply to you, but there has been some research that has come out that explains that these herbicides get into our genes. If grandpa was exposed to Agent Orange then that means that I was exposed, and then I was exposed again when I was a baby. It's in my genes, sweetie. Which means it's in yours.

I don't want you to suffer. It's my job as your mother to make these choices for you right now. You know that eating fast food is bad for you. I can't stop you from doing that when you're at your father's, but I can stop you from doing it here when you're with me. If I let you put that toxic dye onto your hair, then I would be contributing to any future illness you may have. I want you to eat organic and consume as little toxins as possible because I love you and I want to keep you safe. I'm your mother and that's my job."

The cover stayed over her head and I walked into my room and shut the door. I sat down on my bed, my heart heavy, and I took a deep breath. I knew she was mad at me, but I still knew I had made the right decision.


Friday, August 8, 2014

Research | How to Find Information on Cannabis Oil and Your Ailment

What is Cannabis Oil?

To understand the various research that you read about neurological disorders you're going to need wikipedia and a good dictionary. I recommend these as places to start in doing research so you can begin to understand terminology. Understanding terminology is the very first and most important thing you can do when trying to understand if cannabis will help your ailment.

There are many places to start to introduce people to the vast amount of research that is readily available. I usually start by telling them to view:

Rick Simpson's "Run From The Cure",


Sanjay Gupta's "Weed",




and Sanjay Gupta's "Weed 2".


Then I recommend reading these articles:

  1. The Chemicals in Cannabis
  2. What is Cannabis Oil?
  3. Meet Your Cannabinoid Receptors
  4. Cannabis May Help Heal The Brain After Injury: Pretty important study that proves that cannabis helps in so many different areas of the brain
After reading these articles then I recommend googling "medical study", "your ailment" and "medical marijuana". I will be posting articles periodically that I find relevant, but it's important that you do your own research since there is so very little out there in comparison to western medicine. I still think we're way ahead of the game though, considering that we are all guinea pigs! Of course, not you or me! We're cannabis warriors!

Thursday, August 7, 2014

Research | Cannabis Oil for Neurological Disorders


My quest for answers about my neurological disorder led me to cannabis oil. As many of you may or may not know, I'm an activist for marijuana reform in Texas. It's been a passion of mine for a little while now. I became a believer when I sought something more natural to help me with pain. I've been smoking it for the past year for medicinal purposes. It's amazing for pain relief and I don't feel as unhealthy as I did while I on Vicodin.

While doing research on Parkinson's, I came across cannabis medical studies on a regular basis. These studies are about patients not only smoking it, but ingesting cannabis oil. The entire marijuana plant, using alcohol as a solvent, is cooked down into a thick resinous oil. When ingested in this manner marijuana becomes a formidable and powerful medicine. Two good videos to watch are Run From The Cure and Weed.

Run From The Cure has a bunch of important patient testimonials and it explains what the oil is and how it is made. It's important to understand this so that you can understand how it heals the body.



Weed is Dr. Sanjay Gupta's explanation of why he changed his mind about medical marijuana.



According to many studies cannabis oil can prevent further degeneration of brain cells in Parkinson's. The research does not say that it cures the disorder, but it does say that it slows it down and that's pretty wonderful news when one is facing a death sentence. Let's be frank about it. Parkinson's is a death sentence. It's a slow deterioration of the body and the mind until the soul is merely trapped at the end gasping for escape. It's not a way any of us would wish to die. So, when there are alternatives that are surfacing that are showing promising results, then one must look at all alternatives.

I have been a smoker all but five years of my nineteen year smoking life. I began smoking at age 21. I was curious about it's relaxing qualities. It helped me a ton during stressful times in my life. I smoked it a lot when I was misdiagnosed with bipolar and it was very helpful. I stopped smoking it because I started listening to my critics about what a horrible mother I was for smoking marijuana. I didn't understand at the time that cannabis has many medicinal qualities. I was still hearing the old programming and myth that marijuana is an evil drug. What people should've been saying all along is, "Marijuana has been used by people for centuries and it's a wonderful, natural alternative to pharmaceuticals."

I am not fond of pharmaceuticals. I think they're pure poison. They are wrapped up in a wholesome package, and they are far from natural. They cause more disease and I refuse to put any more chemicals into my body. I may not know what I have, but I do know that whatever I have I got from a chemical toxin.

So, I received my cannabis oil on August 15, 2014. I've been documenting it so that I can share my progress with you. I can't deny that the progress is pretty interesting and certainly contains a wow factor...